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Jenny had her ADR at Stenum in early August, 2003, doing fine.
Her story;
My low back pain problems started
in 1988 with a pinched nerve in my neck. I went to an Osteopath (similar to
a chiropractor) for treatment. He picked me up, my back to his back, and
cracked me. The next morning I could barely get out of bed. I went back to
him the next day hoping that he could "fix" me. He again cracked my back. I
lived in agony for another week and then went to a chiropractor with no
success. After about a month I finally went to an Orthopedic Surgeon who
said I had a herniated disc at L5S1. After another month of bed rest he put
me in the hospital in traction and IV's. I gradually got better and was able
to go back to work. Over the years my back would "go out" at least once a
year. I'd be treated with Physical Therapy, anti-inflammatories, muscle
relaxants, etc. During the last couple of years my low back hurt most of
the time. It had gotten to the point where I couldn’t stand, walk or sit for
more than a few minutes without changing position. I went to several
doctors who said my MRI showed Degenerative Disc Disease at L5S1. They
tried a series of 3 Epidural Steroid Injections which didn't work at all.
Then Facet injections and a facet rhizotomy… nothing worked. I went to
another doctor who said my only hope was fusion surgery. I'd heard so many
horror stories about fusion that I spent countless hours scouring the
Internet looking for any alternative. I came across a website by a patient
named Mark who had Artificial Disc Replacement surgery in Germany and was
pretty much cured from years of back pain. I then learned everything I
could about the surgery that was on the Internet. I went to a doctor in
Maryland who was part of the FDA trials who said I met all of the criteria
for the study so I immediately contacted my insurance company. They told me
that because the surgery was still undergoing FDA approval in the US that my
HMO wouldn't cover the cost of over $60,000. I then sent (by email) my MRI
and a cover letter to 3 doctors in Germany who had been doing the surgery
for years. I heard back from Stenum Hospital near Bremen the next day. The
doctor thought I was an excellent candidate for the surgery. The cost would
be $21,000 Euro for everything. After a while I heard from the other two
doctors who also thought I was a good candidate. I chose Stenum because it
was an actual Orthopedic Hospital and not just a clinic and also they gave
me a total package price so no surprises. The International Director, Mr.
Petersen was very responsive to all of my questions, usually emailing me
back the next day and even calling me to see if I had any questions. I made
all of the arrangements via the Internet and my husband and I arrived in
Bremen on Aug.7, 2003 and were picked up at the airport in Bremen by one of
the hospital staff. We went directly to the hospital for preliminary tests
and x-rays. I found that they use a team of 2 doctors for the surgery. Dr.
Ritter-Lang was originally from the spine team at the Charite Hospital and
worked directly with the developers of the Charite 3 Artificial Disc. I
met with Dr. Zechel, the staff surgeon, who answered all of my questions and
assured me that I was the perfect type of patient for this surgery. I had
surgery at 7PM the next night. I kept a journal during my time in Germany
so I could remember how I felt day by day.
Friday night I awoke in the recovery room after surgery and immediately
asked for a shot. The nurse gave me a shot of morphine which put me right to
sleep. When I awoke, my husband was sitting next to me. He said I asked
for more shots every few minutes. Sometimes the nurse would give me one,
sometimes not. My husband said he was worried that I would overdose, but
I’m sure the nurse kept track of how much I could have. I guess that I was
in a lot of pain but thank goodness I really don’t remember much. The next
morning I was taken to my private room where I was given a morphine drip
which I could administer myself when needed. It didn’t quite do the trick
that first day so the doctor ordered some type of pain injection every few
hours as needed. The combination worked great and I was able to get up and
go the bathroom that day with the help of a walker, a nurse and my husband.
I slept a lot the first day but was able to get up in the middle of the
night to go the bathroom by myself (with a walker). By Sunday morning
(about 36 hours post-op) I was able to walkabout 100 feet down the hall with
my walker. The nurses seemed shocked at how well I was doing. I felt
pretty awful but better than yesterday. By that afternoon I was walking a
little further and I must have been feeling better as I cared enough to put
on a little makeup. The next day I walked to the bathroom without the
walker. The doctor said I could finally get a waterproof bandage for the
incision so I could take a shower. The incision didn’t bother me too much
except when I sneezed or coughed. (To this day though, I still need to wear
stretchy pants, no zippers).
I still hadn’t eaten anything except salty broth because my intestines
weren’t working properly. When it was clear that laxatives weren’t going to
do the trick, I was given a suppository, which kicked my intestines into
gear within a few minutes. I was then finally able to eat solid foods.
I had new x-rays taken and met with the doctor. The artificial disc looked
like it was perfectly placed between the vertebrae. I met with the Physical
Therapist who helped me walk with “sticks” which are similar to crutches.
She showed me how to do some light isometric exercises in bed and the proper
way to get in and out of bed.
The next day I showed the doctor where I was still hurting and he said my
disc had been so collapsed that it was starting to self-fuse. He had to
stretch my vertebrae so far apart during surgery that he could hear the
muscles and ligaments stretching. He said the pain should improve a lot
before I have to fly home and to take pain pills.
The next day (4 ½ days post-op) I was able to walk the halls slowly without
a walker or crutches. We tried to go out to dinner but I could only sit for
a few minutes. Luckily the big meal in Germany is at lunchtime so the
restaurant was empty. In retrospect, I realize that after the first couple
of days I wasn’t taking enough pain killers because they made me so sleepy.
I think that I should have taken more and just slept…what else is there to
do in the hospital?
Thursday, 5 ½ days post-op we moved to the Marriott in Bremen. One week
there (including a wonderful breakfast) was included in the package price.
Keep in mind that if I wanted to I could have stayed in the hospital as long
as I wanted at no extra cost. It was totally up to me, but I was ready for
a change of scenery. The hotel was very nice, right in the center of town,
a 5 minute walk to the Town Square where everything is happening. The first
few days it took me alot longer than 5 minutes and I had to stop half way
there. I felt like I was improving every day but I had new aches and pains
which changed location daily. Sometimes my hip, other days my butt, SI
joint, hamstrings, etc. It scared me that maybe I wasn’t healing properly
but when Mr. Petersen called to check on me he assured me that this was
normal. He said it could take a couple of months for everything to get used
to its new position. One good piece of advice he gave me was “if you only
heal 1% each day, in 100 days you’ll be completely healed”. One day Mr.
Petersen even took us on a car tour of Bremen and to the Old-Town shopping
district…can you imagine an employee in the States doing that? I was able
to walk a little while in the Town Center each day and go out to dinner at
night. We drove to the hospital a couple of times for Physical Therapy.
After about 10 days post-op we drove to Hamburg, which is the big port
city. I could walk more by then but still needed to sit often. I had major
hamstring pain for a couple of days which kept me resting more.
Two weeks post-op I had final x-rays which again looked great. The doctor
spent a very long time with us answering all questions. He never made me
feel rushed like the doctors in the US. In fact all the staff could give
lessons to the US hospitals. The doctor assured me that the pains I was
still feeling were normal considering all of the trauma my back had been
thru and the majority of the pain should be gone in a couple of months. I
was told certain precautions such as not vacuuming, stretching or going to
the gym for 2 or 3 months, just to make sure the disc integrates properly
with the vertebrae.
We then flew to London for 1 ½ days of sightseeing. (Mostly on a
double-decker bus but some walking too.) The 8 hour flight home was
completely full so I was in economy class. Luckily I had plenty of Percocet.
As I write this I’ve only been home for 3 days and feel better already. I
still have trouble sitting or walking for too long but most days it’s better
than before surgery. I’m still on a couple of Percocet and Anti-inflammatories
but obviously was able to sit at the computer to type this. So far I feel
like it was a great success. I know people who have had fusion surgery who
are still in bed at this point. I’ll try to update my progress from time to
time.
It's now been 2 months since my surgery. I am
doing great! I am living a fairly "normal" life now. I still have pain in my
thigh where it meets my hip and butt. My right butt cheek goes numb and
tingles sometimes down into my foot. I had this problem before surgery too.
It may be an unrelated problem such as periformas or hip. I've decided to
give it another month or two. All in all I am thrilled with the outcome. I
may never be "back pain-free" but I can at least get back to living.
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